{"id":4099,"date":"2024-01-03T00:00:00","date_gmt":"2024-01-03T08:00:00","guid":{"rendered":"http:\/\/familyhouseinc.org\/article\/the-burgess-family-story-2\/"},"modified":"2025-09-15T15:26:01","modified_gmt":"2025-09-15T22:26:01","slug":"the-burgess-family-story-2","status":"publish","type":"article","link":"https:\/\/familyhouseinc.org\/tl\/article\/the-burgess-family-story-2\/","title":{"rendered":"The Burgess Family Story"},"content":{"rendered":"<div\n\t\t\t\tclass=\"block--core-paragraph\">\n\t\n<p>When Natasha and Will Burgess\u2019 daughter Daisy was diagnosed with Pitt-Hopkins Syndrome, they didn\u2019t know where to turn. Pitt-Hopkins is a rare genetic disorder affecting less than 1300 children around the world, with little information and resources available online. It\u2019s so rare that Natasha, an early years educator with a passion for working with children with special needs, had never heard of it. Children with this disorder often experience delayed developmental milestones, impaired speech and intellectual disability.<\/p>\n\n<\/div>\n\n\n<div\n\t\t\t\tclass=\"block--core-paragraph\">\n\t\n<p>When the Burgess\u2019 saw that <a href=\"https:\/\/www.ucsfbenioffchildrens.org\/\" target=\"_blank\" rel=\"noopener\">UCSF Benioff Children\u2019s Hospital<\/a> was doing a clinical trial for the disorder, they were hopeful. But participating in the clinical trial meant relocating from their home in Canada to San Francisco for several months, and finding affordable housing near UCSF proved to be a major challenge. That\u2019s when a friend recommended Family House.<\/p>\n\n<\/div>\n\n\n<div\n\t\t\t\tclass=\"block--core-paragraph\">\n\t\n<p>From the moment the Burgess\u2019 came to stay at Family House in October, they felt a sense of community.<\/p>\n\n<\/div>\n\n\n<div\n\t\t\t\tclass=\"block--core-paragraph\">\n\t\n<p>\u201cFamily House is so inclusive and understanding. There\u2019s zero judgement if you need anything. It makes us feel like a part of a community, rather than taking advantage of something. We feel like part of a family here.\u201d<\/p>\n\n<\/div>\n\n\n<div\n\t\t\t\tclass=\"block--core-paragraph\">\n\t\n<p>When she is not in clinic or being visited by a nurse, Daisy has been able to experience some of San Francisco\u2019s best attractions during her stay at Family House. The Burgess\u2019 have been to the Exploratorium, the California Academy of Sciences, explored local neighborhoods (and swimming pools!), and have participated in many Family House events. \u201cWe try to explore around the city every day,\u201d Natasha says. \u201cThere\u2019s always something new to discover.\u201d<\/p>\n\n<\/div>\n\n\n<div\n\t\t\t\tclass=\"block--core-paragraph\">\n\t\n<p>The Burgess\u2019 will be staying at Family House until the end of February. 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flex-[0_0_100%] md:flex-[0_0_auto] max-w-full pl-3 md:pl-5\"\n\t\t\t\t\t\t\trole=\"group\"\n\t\t\t\t\t\t\taria-roledescription=\"Slide\"\n\t\t\t\t\t>\n\t\t\t\t\t\t\t\n\t\n\t\t\n\t\t\n\t\t\t\t\n\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img\n\t\t\t\t\tclass=\"md:h-[31rem] w-auto rounded-xl\"\n\t\t\t\t\tloading=\"lazy\"\n\t\t\t\t\tsizes=\"auto\"\n\t\t\t\t\twidth=\"1920\"\n\t\t\t\t\theight=\"2560\"\n\t\t\t\t\tsrcset=\"https:\/\/familyhouseinc.org\/wp-content\/uploads\/2025\/09\/Photo-Oct-30-2023-3-36-26-PM-scaled-1.jpg 1920w, https:\/\/familyhouseinc.org\/wp-content\/uploads\/2025\/09\/Photo-Oct-30-2023-3-36-26-PM-scaled-1-1200x1600.jpg 1200w, https:\/\/familyhouseinc.org\/wp-content\/uploads\/2025\/09\/Photo-Oct-30-2023-3-36-26-PM-scaled-1-1700x2267.jpg 1700w, https:\/\/familyhouseinc.org\/wp-content\/uploads\/2025\/09\/Photo-Oct-30-2023-3-36-26-PM-scaled-1-1400x1867.jpg 1400w, https:\/\/familyhouseinc.org\/wp-content\/uploads\/2025\/09\/Photo-Oct-30-2023-3-36-26-PM-scaled-1-1152x1536.jpg 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